By Sophie
Link: https://www.youtube.com/watch?v=5lcG-12FCW8&t=171s
Available until: 28th February 2021
When the Conservatives came into power and the world began to
fall apart, they decided to restructure the benefit process. At that stage,
people with disabilities were claiming a benefit called Disability Living
Allowance. The Government planned to scrap this and replace it with something
called Personal Independence Payment. Both benefits give financial support to
people with physical and mental health problems and disabilities.
The aim was for the Department of Work and Pensions to get as many people as possible off benefits.
It worked quite well… for them. 54% of the people who were
claiming DLA were not awarded PIP. Although a large percentage of the appeals
were won, the experience was deeply distressing.
We Ask These Questions of Everybody (actually not
true: they didn’t ask me all these questions) aims to highlight the distress,
fear and confusion of applying for PIP. The two people who worked to create
this opera, Amble Skuse and Toria Banks, both have a disability. The story is
about a fictional character called Hannah, but the events are inspired by real
life. Throughout the opera, Hannah converses with Lyn, her PIP assessor. Lyn is
part of an organisation which is employed by the DWP in order to help them
decide whether a person is sufficiently disabled to receive benefits. She asks
Hannah questions and writes down her answers. They are then given to the DWP
and someone who has never met Hannah makes the decision.
Hannah and Lyn sing their conversation, but in between their
exchanges, we hear the voices of real people who have suffered the anxieties
and impossibilities of applying for PIP. The voices explain how they feel and
how they were made to feel. The sadness, fear and anger. The feeling of being
persecuted. The feeling that people want those with disabilities not to exist
anymore. The way their words were written down inaccurately by the assessor and
twisted in order to prove what the DWP wanted them to prove. The personal,
probing, irrelevant questions. The groundless judgements. The inability to see
anyone as an individual; the attempts to put us into little boxes; the
assumption that all of us show depression, anxiety, pain and disability in the
same way.
The music is modern and attractive. Hannah sings sweetly and
conveys a strong sense of vulnerability. Lyn shows calm and slightly detached
sympathy. There aren’t really any songs which opera singers will be wanting to
release on their albums of favourite arias, but I don’t feel the intention is
that the music should be our main focus. It’s more about the libretto; the
thoughts and ideas that are expressed through music. It feels as though the
opera was written more to educate – and express physical and emotional pain –
than to entertain.
There is nothing wrong with this at all. I think music, or
indeed any art form, can be an extremely valuable way both of expressing
something we already know in a new way and of introducing people to a new idea.
Although the conversation between Hannah and Lyn is part of a real
conversation, it can sometimes be easier for people to take in a new idea,
particularly an emotionally challenging one, if it’s presented artistically. Fictionalising
can have a distancing effect which can remove prejudices and allow sympathies
to creep in where perhaps they wouldn’t in real life. We can often absorb facts
through fiction and finds it changes our thought processes more easily than if
we read something that challenges our beliefs more directly.
It is an incredible idea for an opera – or for any work at
all – but I do wonder how accessible it is. It is essential that a work on such
an important subject reaches as wide a range of people as possible and while
opera is an incredible art form, it’s not a particularly popular one and even some
seasoned operagoers struggle a bit with modern operas and their irregular
tunes. This makes me wonder whether opera is the most effective way to tell
this story. I have listened to a lot of opera and classical music so I can hear
and appreciate the beautiful musical line in We Ask These Questions of Everybody,
but a lot of people will be unable to do this due to lack of experience of
opera (experience is so important in music – I have limited experience of rap
and country music and that’s probably a large part of the reason why I don’t
enjoy them).
The video displays the words in the opera, which is
theoretically very helpful for me as I have a hearing impairment. I really
struggled at English National Opera until they started using surtitles. But the
video is disorientating and physically difficult to watch. The words appear one
letter at a time as though they’re being typed, some accompanied by images of
emails and text messages, some appearing on the screen. Behind these letters
and images are what looks like pieces of paper with different colours and
textures. These images sometimes move around, which actually aggravates some of
the symptoms of my disabilities. It’s visually striking and clever, but I can’t
help feeling that the message of this opera is so important, it needs to be as
clear and easy to access as possible. With any opera, you don’t want people to
give up on it and watch something else – and this opera aims to do so much more
than entertain.
It’s very likely that any disappointment I’m feeling is at
least partly due to the fact I feel my own voice was not represented; that many
of the aspects of the PIP application and appeal that stood out to me were not
included in this opera. This activates my paranoia and makes me wonder if I am
really disabled.
But the fact I don’t relate to all of it is actually a
strength of the work. One of the problems with the DWP assessment is that it
assumes that we’re all the same and we all react in the same way to a
particular trigger. If you wear make-up and look clean, you’re not depressed.
If you’re not sweating, you’re not anxious. If you’re not showing signs of
physical pain, you’re not in pain. If you’re not taking the strongest possible
medication or being regularly seen by a specialist, you’re not that ill. It
goes beyond the scope of this review to describe all the problems with these
assumptions, but I think the fact I don’t relate to everything in this opera shows
how different people with disabilities can be; that our problems are all
different; that I do some things more easily than Hannah, but there are some
things she does which I can’t do at all. Our triggers are different and so are
our reactions and the way we present our reactions. That is one of the most
important things the DWP needs to learn. Though I would say the most important
thing for them to learn is that we are actually human beings. No; more than
that. We are fragile human beings. That’s why we’re claiming.
There are people who would rather live in poverty than apply
for PIP again. There are people who applied for PIP for physical health reasons
and are now receiving mental health treatment because of their experience with
the DWP. There are people who killed themselves.
This is not okay. And I can only hope and dream that
everyone who watches We Ask These Questions of Everybody will understand
that.
Hi Sophie, thanks so much for watching and reviewing the show. What you say is really thoughtful, and it would be good for us to understand how the captions could have been more accessible for you. Would straightforward subtitles have been better, or useful as an additional option, or are there other smaller changes we could have made? I'm sorry your experience wasn't represented in the piece - your thoughts about that in the review are very generous and I think, perceptive. The character of Hannah is taken from one woman's experience, all of the scenes with Lynn are taken verbatim from her transcript - we just edited them. This absolutely means it won't show everything, but I am sorry that it made you wonder if you are 'really disabled' - I have a lot of experience of disability gatekeeping and disbelief, not just from the DWP, and I hate the idea of contributing to this feeling in someone else. Anyway, I really appreciated reading your review, and it would always be good to get your perspective. Toria
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